Continued Pee Problems

My husband apparently feels so bad about my pee problems that he is now suffering from kidney stones. We are quite the duo. Poor guy has been struggling with significant pain for a little over 2 weeks. He’s been to doctor countless times and even the ER and he keeps getting the same answer that it will pass soon. He is on a lot of pain meds. Poor guy, he looks miserable. Hopefully it will pass soon. I guess it hurts when it’s traveling to the bladder, then he is supposed to get a break until it travels to his urethra. From the urethra until it’s completely passed is said to be extremely painful. The good news is that once it has passed he is supposed to have instant relief and feel better.

My hubby hates needles. And I mean HATE. He is willing to go into the hospital again to have IV pain meds or even have surgery to get the stone out. He is so miserable and it’s pretty sad to watch. He has also been so sweet because he told me he gets my bladder pain. Oh and he gets to pee into a strainer to keep the stone so the doctors can determine what type of stone it is. I didn’t know that was a thing or that there was more than 1 type of kidney stones.

And of course I am still in an IC (interstitial cystitis) flare up. The same one that has been going on for what, the past 6 weeks? This is hell on earth. I think that I would take getting repeatedly punched in the face by a large man than deal with this crap anymore. I started to keep a log of how many times I peeing a day. The average day is in the 40s. That is excessive. Especially, since I have to concentrate to pee. I can’t talk, be on my iPad or phone. I can’t pet the cats. It is serious business where I have to will my bladder to cooperate.

Staying in bed seems to be the only real thing that helps ease the symptoms, as well as hold my crotch. Neither of these options get me very far in my life. Any time I get up it feels like a heavy weight wants to fall out of me. It’s an instant need to urinate, but then it gets stage fright apparently and needs to be coaxed into leaving my body.

Then after I think I got everything out, I have to pee again. I can’t remember the last time that I didn’t feel the need to pee. It makes me sad because my daughter now goes around the house holding her vagina and says “ouch” or “it hurts.” Nothing appears to be wrong with her so I think she’s learning that behavior from me.

I hope this issue gets resolved soon. I would hate to constantly need to take it easy and then my daughter resents me one day for not being a fun or present parent. Stress adds to the flare ups. It also seems like if the wind blows the wrong direction I feel like I have a raging UTI. I don’t look forward to traveling because I usually get an IC flare up whenever I’m on a plane. I get a flair up if anything is too stressful. Ha! Life is stressful. Raising my toddler is stressful. Um..working at a jail is stressful. But I can’t and don’t want to quit my job. I definitely can’t quit being a mother. How am I supposed to avoid stress in my life, when stress is a part of life?

We went snowmobiling on New Years Eve. We had to cut the day a bit short. Going over the bumps did a number on my bladder. I also peed myself numerous times throughout the day. Don’t you just love the feeling of having no control over your bladder and peeing on yourself? I love it. It’s so fun….that’s another issue. I can’t engage in activities I enjoy without either getting a flare up or can’t find anywhere to pee. This really prevents me from even wanting to socialize. I think the mess that is my bladder and girl parts make it very easy for me to stay in my house and live in my bed. I try to get out, but as of late, I have to pee every few minutes that it’s not worth it to get out of the house.

One day there will be a cure for this horrid disease. I hope. I insist! This whole condition can make a person feel completely isolated and lonely. I don’t want to complain about it. I also want to get my frustrations out. Some good news is that I’m seeing a uro-gyno who specializes in pelvic pain. But my appointment isn’t until Feb. 4. But the Dr. is a female. And she specializes in IC and Endometriosis. And I have recently found out that you can get Botox to help paralyze some of the spasms that make the condition so miserable. I’m going to inquire about that. If I decide on the Botox I wonder if I could convince the Dr. to just put a little extra into my face. I mean, she already has the stuff and if you’re putting it one place can’t you just put it anywhere? I’m going to ask her. Hopefully she will be awesome and say yes. A girl can dream. Guess what I have to do now? I have to pee….again. I’m having so much fun! I think I’m the one keeping Charmain and AZO in business since those are the 2 most common things I buy.

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